Welcome

I decided to write this blog because my septoplasty and turbinate reduction surgery, performed in Aug 2012, left me with Empty Nose Syndrome (ENS). I'm blogging this to inform folks of this surgery before they have it performed, to tell my story, and help others out there suffering from ENS.

There are always possible complications with surgery from minor annoyances to life debilitating symptoms. Make no mistake, ENS is a possible outcome post nose surgery; however I believe it is rare occurrence. There is currently no sound way to remediate ENS, only stave off symptoms for a while.

In my opinion, someone should only have this type of surgery if there is/was a trauma to their nose that left a noticeable problem that is not remedied with simple solutions.

Tuesday, January 9, 2018

New Beginning

I had another procedure even amongst all the anxiety, unknown, and the terror of what could happen.

I had grown accustomed to my new baseline, my low level of anxiety at all times. I adjusted to having to lay in a specific position to sleep, had to sit in a specific way to feel comfortable and able to function. Sleeping a maximum of 4 to 5 hours at a time at getting up at least once a night. Having a glass of water next to my bed because I was always so thirsty at night. Having to take my Sertraline every day. Waking up severely tired. I even used Afrin in my nose to get a "good night" sleep, which consisted of about 8 hours of sleep, however I knew this would only be temporary and worse the next night due to the rebound congestion.

I was finally awarded 6 month, all expenses payed, to Dr. Nayak at Stanford University from Kaiser Permanente Nor Cal. I had been fighting with them for just about 1 year to be seen by Dr. Nayak, the ENS specialist working with Stanford University! Good thing I was awarded that referral because my life has definitely changed for the better! Everything is more enjoyable, more relaxed, and I am more aware of everything. For better or worse, I have to keep telling myself that this is my new life; I'm fixed. It brings me tremendous joy, however with it brings severe sadness as I have been suffering with ENS for more than 5 years of my life... essentially my whole undergraduate degree. I struggled so much in my life, potentially missed out on so many opportunities because of ENS. It is a terrible thing to happen.

One week after my RFA on my right turbinate and injection (temporary to see if the position and fit will be favorable) to the left turbinate - I felt different. Scared, of course, that I could develop ENS on my right turbinate of course. It doesn't seem I have any severe negative side-effects. I had the procedure on 08 Dec. 2017, almost 4.5 weeks ago. Some of the changes I have noticed:

Number one must be mental clarity. It is amazing how much this changed from my baseline with ENS. I did not really fully grasp the severity of how much anxiety and ENS destroys one's mental acuity, thought process, and memory. I really didn't think I had ENS badly, and I really didn't have it nearly as severely as others. And I am so grateful. For example, I am able to clearly think about my day's agenda, what I will do several steps in advance. Like what I was capable of doing prior to my initial surgery in 2012. I can sit and actually think about something, like enjoy thinking about an object, an idea, a theoretical thought that I otherwise would never be able to contemplate. Making decisions clearly, having a conversation with someone, or interacting like a human... something I had to literally retrain myself to do with ENS. All different now. But I was so used to it, used to my old ways, how I coped with every day life. I lived moment by moment, not really able to concentrate on my future or anything really. But I can now.



I feel like I have another chance in life.

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